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International Parkinson and Movement Disorder Society

 

Non-Motor Symptoms in Parkinson's Disease Study Group

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Have questions? Contact the group’s MDS Staff Liaison, Allie Stoffel, at astoffel@movementdisorders.org.

Goals

  1. To collect new and novel patient and carer reported information on Non-Motor Symptoms (NMS) of Parkinson’s disease from around the world
  2. To develop a MDS version of a new PD non motor symptoms scale
  3. To ensure that comprehensive and unified NMS assessments in clinical trials and scientific studies are increasingly used to increase the “real life” value of clinical trials and clinical studies
  4. To set up and start international cross cultural studies, to improve existing tools for NMS (e.g. NMSS and NMSQ)
  5. To develop animal models addressing non-motor phenotypes of PD
  6. To refine, validate and establish non-motor subtypes of PD and related biomarkers

View the group's: 

 

Ongoing Projects

  •  Bodily mapping of symptoms and emotions in Parkinson’s disease – Data will be collected from both in-person study visits and online survey. 
  • Vision in PD – Multicenter collaborative observational, longitudinal follow-up study evaluating the prevalence, severity, and impact of vision disturbances in patients with PD. 
  • Living with long-term conditions scale - Cross-cultural adaptation and relationship with non-motor symptoms in different populations. 
  • Review on apathy in PD. 

MDS Non-Motor PD Study Group members pose for a photo in San Diego, CA, in June 2015.

Leadership

K. Ray Chaudhuri
Chair
Cristian Falup-Pecurariu

Steering Committe:
K. Ray Chaudhuri
Cristian Falup-Pecurariu
Per Odin
Anette Schrag
Daniel Weintraub

Getting Involved

In addition to the MDS staff liaison, the Study Group's administrative managers are Lucia Batzu (luciabatzu@gmail.com) and Iulia Murasan (iulia_murasan@yahoo.com).

 

Themed Subgroups

 

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Published Papers

Published paper

Gastrointestinal barriers to levodopa transport and absorption in Parkinson's disease

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  • Published paper

Published paper

Comparative Effectiveness of Device-Aided Therapies on Quality of Life and Off-Time in Advanced Parkinson's Disease: A Systematic Review and Bayesian Network Meta-analysis

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  • Published paper

Published paper

Effects of Levodopa-Carbidopa Intestinal Gel Compared with Optimized Medical Treatment on Nonmotor Symptoms in Advanced Parkinson's Disease: INSIGHTS Study

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  • Published paper

Published paper

Why do 'OFF' periods still occur during continuous drug delivery in Parkinson's disease?

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  • Published paper

Published paper

Movement disorders in COVID-19 times: impact on care in movement disorders and Parkinson disease

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  • Published paper

Published paper

Spotlight on non-motor symptoms and Covid-19

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  • Published paper

Published paper

Does Ethnicity Influence Recruitment into Clinical Trials of Parkinson's Disease?

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Published paper

Wellness, sexual health, and nonmotor Parkinson's

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  • Published paper

Published paper

The Impact of COVID‐19 on Access to Parkinson's Disease Medication

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Published paper

Pilot Study of the International Parkinson and Movement Disorder Society‐sponsored Non‐motor Rating Scale (MDS‐NMS)

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Published paper

Non-motor outcomes of subthalamic stimulation in Parkinson's disease depend on location of active contacts

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  • Published paper

Published paper

Short-term quality of life after subthalamic stimulation depends on non-motor symptoms in Parkinson's disease

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  • Published paper

Published paper

Nonmotor symptoms evolution during 24 months of bilateral subthalamic stimulation in Parkinson's disease

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  • Published paper

Published paper

Quality of life outcome after subthalamic stimulation in Parkinson's disease depends on age

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  • Published paper

“  ”
— K. Ray Chaudhuri

“Non-motor symptoms have been the defining cry from people with Parkinson's. Pioneering work from the MDS Non-Motor Symptoms in Parkinson's Disease Study Group has led to global adoption of clinical measurement of these symptoms in real life, using novel scales and questionnaires, in addition to helping the industry start novel, cutting-edge clinical trials to address treatment of non-motor symptoms.” 

 

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