Research Resources

Explore the latest discoveries and find assessments, databases, training, and other tools to support your research.

Research resources:

Latest Research

Research Tools

Clinical Outcome Assessments

MDS has developed a variety of clinical outcome assessments that provide reliable, high-quality standards for research in Movement Disorders.

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Funding and Grants

View a list of organizations that offer funding for Movement Disorders-related studies:

View grant list

The MJFF

Parkinson´s Foundation

European Research Council

TRIALECT

Ataxia Canada

Parkinson's Research Program (PRP) from the CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAMS

Jacques and Gloria Gossweiler Foundation

Parkinson’s and Movement Disorder Foundation grants

Brain Research Foundation

International Essential Tremor Foundation

National Organization for Rare Disorders (NORD)

Dystonia Medical Research Foundation (DMRF)

Dystonia Medical Research Foundation Canada

National Ataxia Foundation (NAF)

Friedreich´s Ataxia Research Alliance (FARA)

Cure Parkinson's

American Parkinson Disease Association (APDA)

Parkinson´s UK

Aligning Science Across Parkinson’s (ASAP)

American Academy of Neurology (AAN)

Parkinson Alliance

Davis Phinney Foundation for Parkinson´s

NINDS

Zrinski Research Grants

A-T Children’s Project

Hereditary Disease Foundation

The Huntington

Huntington’s NSW ACT Research grant

European Huntington´s Disease Network

Huntington´s disease Association

CHDI Foundation

Databases

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MDSGene

Systematic overview of published data on movement disorder patients reported to carry causative gene mutations

https://www.mdsgene.org/

Accelerating Medicines Partnership Parkinson’s disease (AMP PD) Knowledge Platform

Clinical, whole genome, and transcriptomics data from persons with PD and controls

https://amp-pd.org/

BioFIND

Observational clinical data and biospecimen (including blood and cerebrospinal fluid) data
Intented to serve as complement to PPMII

https://biofind.loni.usc.edu/

Critical Path Institute

Standardized patient-level from PD patients involved in past clnical trials

https://c-path.org/programs/cpp/

Data in Brief (published datasets)

Published datasets involving patients with Parkinson's Disease

https://www.data-in-brief.com/action/doSearch?text1=parkinson%27s+disease&field1=AllField&journalCode=dib&SeriesKey=dib

Fox DEN

Patient-reported outcomes and genetic data from persons with PD and members of their support systems

https://foxden.michaeljfox.org/insight/explore/insight.jsp

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Levodopa Response Trial Wearable Data

Wearable sensor data collected to understand the feasibility of at-home monitoring of PD symptoms and motor fluctuations

https://www.synapse.org/#!Synapse:syn20681023/wiki/594678

LRRK2 Cohort Consortium

Data from LRRK2 Cross-sectional Study, LRRK2 Longitudinal Study, and the 23andMe Blood Collection Study

https://www.michaeljfox.org/form/lrrk2-data-use-e-consent

Neurodegenerative Disease Research (JPND) Global Cohort

Searchable catalogue of cohort studies that covers both disease-focused and general population studies

https://www.neurodegenerationresearch.eu/jpnd-global-cohort-portal/

Parkinson's Progression Markers Initiative

Longitudinal clinical, biospecimen, and imaging data from persons with PD, prodromal PD, and healthy controls

https://www.ppmi-info.org/access-data-specimens/download-data

PDGene

Meta-analysis of genome-wide association studies for populations of European descent
Includes data on genetic variants for both PD cases and controls

http://www.pdgene.org/methods

RNA Sequencing Project

Whole exome and genome sequencing were performed on whole-blood extracted DNA samples

https://www.ppmi-info.org/access-data-specimens/download-data

MDS Research Groups

Basic Science SIG

A forum that brings together basic science professionals interested in movement disorders.

Learn more

Become a Member

Study Groups

Groups of MDS members that seek to collaboratively study a specific aspect of movement disorders.

About Study Groups

Task Forces

Task Force groups form with a specific mandate in mind, usually to address a vital research or other need in the field.

About Task Forces

Education

Courses for researchers

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Journal CME 39.12: Immunometabolic signature and tauopathy markers in blood cells of Progressive Supranuclear Palsy

Dec 21, 2024 - Dec 21, 2025

Experienced / Intermediate

CME Credits:1.00

906Journal CME 39.12: Immunometabolic signature and tauopathy markers in blood cells of Progressive Supranuclear PalsyJournal CME 39.12<p>The Journal CME 39.12 article provides a summary to a&nbsp;broad biological characterization of peripheral immune cells in a selected PSP cohort.</p>602024-12-21https://education.movementdisorders.org/Detail/906/Journal-CME-39-12:-Immunometabolic-signature-and-tauopathy-markers-in-blood-cells-of-Progressive-Supranuclear-Palsyhttps://education.movementdisorders.org/Upload/ActivityImages/Journal-CME562837664663.jpg2024-12-21T00:00:002025-12-21T00:00:00<p><strong>ACCREDITATION STATEMENT</strong></p><p>This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME). The International Parkinson and Movement Disorder Society is accredited by the ACCME to provide continuing medical education for physicians.</p><p><br></p><p><strong>CREDIT DESIGNATION STATEMENT</strong></p><p>The International Parkinson and Movement Disorder Society designates this activity for a maximum of 1 <em>AMA PRA Category 1 Credits&trade;</em>. Physicians should only claim credit commensurate with the extent of their participation.</p><p><br></p><p><strong>FACULTY DISCLOSURE</strong></p><p>All individuals in control of content for this activity are required to disclose all financial relationships with ineligible companies (as defined by the ACCME) over the last 24 months. Disclosure information is available <a class="fr-file" href="https://s3-us-east-2.amazonaws.com/mds-lms/FroalaFiles/Journal%20CME%2039.12%20-%20Disclosure_18122024022801.pdf" rel="noopener noreferrer" target="_blank"><u>HERE</u></a>. All relevant financial relationships have been mitigated in advance of this program.</p><p><br></p><p><strong>METHOD OF PARTICIPATION</strong></p><p>Each module will take approximately one (1) hour to complete. Upon reading the article, participants will take a post-test and must receive a grade of 75% or higher to pass. Participants are allowed multiple attempts to complete the post-test. Once the post-test is passed, participants are required to complete the module evaluation.</p><p><br></p><p><strong>SATISFACTORY COMPLETION</strong></p><p>Participants must complete an evaluation for each session they attend to receive continuing medical education credit. Your chosen session(s) must be attended in their entirety. Partial credit for individual sessions is not available.</p><p><br></p><p><strong>CONTENT VALIDITY STATEMENT</strong></p><p>All recommendations involving clinical medicine in MDS activities are based on evidence that is accepted within the profession of medicine as adequate justification for their indications and contraindications in the case of patients. All scientific research referred to, reported or used in CME in support or justification of a patient care recommendations conforms to the generally accepted standards of experimental design, data collection and analysis. Activities that promote recommendations, treatment or manners of practicing medicine not within the definition of CME or are knowing to have risks or dangers that outweigh the benefits or are knowing to be ineffective in the treatment of patients do not constitute valid CME.</p>MDS Education<p><strong>COURSE PURPOSE</strong></p><p>Journal CME highlights various articles covering relevant issues, developments and research topics in the area of movement disorders. Articles are selected from Movement Disorders, the official Journal of the International Parkinson and Movement Disorder Society.</p><p><br></p><p><strong>LEARNING OBJECTIVES</strong></p><p>Upon completion of this activity, learners will be able to:</p><p>1. Understand the biological features of peripheral immune cells in PSP patients.</p><p>2. Assess the link between peripheral immunity and central neuropathology and the relative translational reliability of PBMCs in PSP.</p><p>3. Evaluate how this study widened the landscape of potential disease-modifying treatments for PSP.</p><p><br></p><p><strong>INTENDED AUDIENCE</strong></p><p>This activity is intended for clinicians, other health professionals, researchers, policy makers from throughout the world, both MDS members and non-members, who interact with patients living with Movement Disorders.</p><p><br></p><p><strong>HARDWARE AND SOFTWARE REQUIREMENTS</strong></p><p>1. Active Internet connection (DSL or Cable). Dial-up connection will have constant buffering problem.</p><p>2. Compatible with Windows PC and MAC (256 MB of RAM or higher).</p><p>3. Activity is best viewed on Internet Explorer 9.0 or higher, Safari 5.0 or higher and Firefox 29.0 or higher.</p><p>4. Adobe Flash Player 12.0 (or higher).</p><p>5. Adobe Reader to print certificate.</p>Marco Rosina, MS, PhD1.000/Courses/Journal-CME-39.12-Immunometabolic-signature-and-tauopathy-markers-in-blood-cells-of-Progressive-Supranuclear-Palsy.htm2024-12-21T00:02:26.24000Experienced / IntermediateOnline

Journal CME 39.11: Skin Tau Quantification as a Novel Biomarker in Huntington's Disease

Nov 21, 2024 - Nov 21, 2025

Experienced / Intermediate

CME Credits:1.00

901Journal CME 39.11: Skin Tau Quantification as a Novel Biomarker in Huntington's DiseaseJournal CME 39.11The Journal CME 39.11 article provides an investigation on skin tau quantification as a potential biomarker for Huntington's disease and its correlation with disease burden outcomes.602024-11-21https://education.movementdisorders.org/Detail/901/Journal-CME-39-11:-Skin-Tau-Quantification-as-a-Novel-Biomarker-in-Huntington's-Diseasehttps://education.movementdisorders.org/Upload/ActivityImages/Journal-CME562837664663.jpg2024-11-21T00:00:002025-11-21T00:00:00<p><strong>ACCREDITATION STATEMENT</strong></p><p>This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME). The International Parkinson and Movement Disorder Society is accredited by the ACCME to provide continuing medical education for physicians.</p><p><br></p><p><strong>CREDIT DESIGNATION STATEMENT</strong></p><p>The International Parkinson and Movement Disorder Society designates this activity for a maximum of 1 <em>AMA PRA Category 1 Credits&trade;</em>. Physicians should only claim credit commensurate with the extent of their participation.</p><p><br></p><p><strong>FACULTY DISCLOSURE</strong></p><p>All individuals in control of content for this activity are required to disclose all financial relationships with ineligible companies (as defined by the ACCME) over the last 24 months. Disclosure information is available <a class="fr-file" href="https://s3-us-east-2.amazonaws.com/mds-lms/FroalaFiles/Journal%20CME%2039.11%20%E2%80%93%20Disclosures_08112024014850.pdf" rel="noopener noreferrer" target="_blank"><u>HERE</u></a>. All relevant financial relationships have been mitigated in advance of this program.</p><p><br></p><p><strong>METHOD OF PARTICIPATION</strong></p><p>Each module will take approximately one (1) hour to complete. Upon reading the article, participants will take a post-test and must receive a grade of 75% or higher to pass. Participants are allowed multiple attempts to complete the post-test. Once the post-test is passed, participants are required to complete the module evaluation.</p><p><br></p><p><strong>SATISFACTORY COMPLETION</strong></p><p>Participants must complete an evaluation for each session they attend to receive continuing medical education credit. Your chosen session(s) must be attended in their entirety. Partial credit for individual sessions is not available.</p><p><br></p><p><strong>CONTENT VALIDITY STATEMENT</strong></p><p>All recommendations involving clinical medicine in MDS activities are based on evidence that is accepted within the profession of medicine as adequate justification for their indications and contraindications in the case of patients. All scientific research referred to, reported or used in CME in support or justification of a patient care recommendations conforms to the generally accepted standards of experimental design, data collection and analysis. Activities that promote recommendations, treatment or manners of practicing medicine not within the definition of CME or are knowing to have risks or dangers that outweigh the benefits or are knowing to be ineffective in the treatment of patients do not constitute valid CME.</p>MDS Education<p><strong>COURSE PURPOSE</strong></p><p>Journal CME highlights various articles covering relevant issues, developments and research topics in the area of movement disorders. Articles are selected from Movement Disorders, the official Journal of the International Parkinson and Movement Disorder Society.</p><p><br></p><p><strong>LEARNING OBJECTIVES</strong></p><p>Upon completion of this activity, learners will be able to:&nbsp;</p><p>1. Understand how skin tau quantification could serve as a potential biomarker for the pathophysiology of Huntington&rsquo;s disease&nbsp;</p><p>2. Assess how using skin tau levels in cluster analysis along with genetic and clinical measures could lead to improved subject stratification</p><p>3. Evaluate how tau levels could capture significant changes during disease progression</p><p><br></p><p><strong>INTENDED AUDIENCE</strong></p><p>This activity is intended for clinicians, other health professionals, researchers, policy makers from throughout the world, both MDS members and non-members, who interact with patients living with Movement Disorders.</p><p><br></p><p><strong>HARDWARE AND SOFTWARE REQUIREMENTS</strong></p><p>1. Active Internet connection (DSL or Cable). Dial-up connection will have constant buffering problem.</p><p>2. Compatible with Windows PC and MAC (256 MB of RAM or higher).</p><p>3. Activity is best viewed on Internet Explorer 9.0 or higher, Safari 5.0 or higher and Firefox 29.0 or higher.</p><p>4. Adobe Flash Player 12.0 (or higher).</p><p>5. Adobe Reader to print certificate.</p>Iñigo Ruiz-Barrio, MD1.000/Courses/Journal-CME-39.11-Skin-Tau-Quantification-as-a-Novel-Biomarker-in-Huntingtons-Disease.htm2024-11-21T00:01:15.25700Experienced / IntermediateOnline

Journal CME 39.10: Frequency-Selective Suppression of Essential Tremor via Transcutaneous Spinal Cord Stimulation

Oct 21, 2024 - Oct 21, 2025

Experienced / Intermediate

CME Credits:1.00

894Journal CME 39.10: Frequency-Selective Suppression of Essential Tremor via Transcutaneous Spinal Cord StimulationJournal CME 39.10The Journal CME 39.10 article provides an investigation of the potential of tSCS to disrupt tremor in a frequency-dependent manner in a cohort of patients with ET.602024-10-21https://education.movementdisorders.org/Detail/894/Journal-CME-39-10:-Frequency-Selective-Suppression-of-Essential-Tremor-via-Transcutaneous-Spinal-Cord-Stimulationhttps://education.movementdisorders.org/Upload/ActivityImages/Journal-CME562837664663.jpg2024-10-21T00:00:002025-10-21T00:00:00<p><strong>ACCREDITATION STATEMENT</strong></p><p>This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME). The International Parkinson and Movement Disorder Society is accredited by the ACCME to provide continuing medical education for physicians.</p><p><br></p><p><strong>CREDIT DESIGNATION STATEMENT</strong></p><p>The International Parkinson and Movement Disorder Society designates this activity for a maximum of 1 <em>AMA PRA Category 1 Credits&trade;</em>. Physicians should only claim credit commensurate with the extent of their participation.</p><p><br></p><p><strong>FACULTY DISCLOSURE</strong></p><p>All individuals in control of content for this activity are required to disclose all financial relationships with ineligible companies (as defined by the ACCME) over the last 24 months. Disclosure information is available <a class="fr-file" href="https://s3-us-east-2.amazonaws.com/mds-lms/FroalaFiles/Journal%20CME%2039.10%20-%20Disclosures_09102024032910.pdf" rel="noopener noreferrer" target="_blank">HERE</a>. All relevant financial relationships have been mitigated in advance of this program.</p><p><br></p><p><strong>METHOD OF PARTICIPATION</strong></p><p>Each module will take approximately one (1) hour to complete. Upon reading the article, participants will take a post-test and must receive a grade of 75% or higher to pass. Participants are allowed multiple attempts to complete the post-test. Once the post-test is passed, participants are required to complete the module evaluation.</p><p><br></p><p><strong>SATISFACTORY COMPLETION</strong></p><p>Participants must complete an evaluation for each session they attend to receive continuing medical education credit. Your chosen session(s) must be attended in their entirety. Partial credit for individual sessions is not available.</p><p><br></p><p><strong>CONTENT VALIDITY STATEMENT</strong></p><p>All recommendations involving clinical medicine in MDS activities are based on evidence that is accepted within the profession of medicine as adequate justification for their indications and contraindications in the case of patients. All scientific research referred to, reported or used in CME in support or justification of a patient care recommendations conforms to the generally accepted standards of experimental design, data collection and analysis. Activities that promote recommendations, treatment or manners of practicing medicine not within the definition of CME or are knowing to have risks or dangers that outweigh the benefits or are knowing to be ineffective in the treatment of patients do not constitute valid CME.</p>MDS Education<p><strong>COURSE PURPOSE</strong></p><p>Journal CME highlights various articles covering relevant issues, developments and research topics in the area of movement disorders. Articles are selected from Movement Disorders, the official Journal of the International Parkinson and Movement Disorder Society.</p><p><br></p><p><strong>LEARNING OBJECTIVES</strong></p><p>Upon completion of this activity, learners will be able to:&nbsp;</p><p>1. Understand the difficulties surrounding the general understanding of essential tremor and the ability to treat the syndrome</p><p>2. Assess the ways in which the study explored the potential of transcutaneous spinal cord electrical stimulation (tSCS) to modify the propagation of tremor to the muscles in ET syndrome</p><p>3. Evaluate how the study demonstrated that open-loop cervical tSCS effectively reduced postural tremor in ET when delivered at the subject&rsquo;s tremor frequency</p><p><br></p><p><strong>INTENDED AUDIENCE</strong></p><p>This activity is intended for clinicians, other health professionals, researchers, policy makers from throughout the world, both MDS members and non-members, who interact with patients living with Movement Disorders.</p><p><br></p><p><strong>HARDWARE AND SOFTWARE REQUIREMENTS</strong></p><p>1. Active Internet connection (DSL or Cable). Dial-up connection will have constant buffering problem.</p><p>2. Compatible with Windows PC and MAC (256 MB of RAM or higher).</p><p>3. Activity is best viewed on Internet Explorer 9.0 or higher, Safari 5.0 or higher and Firefox 29.0 or higher.</p><p>4. Adobe Flash Player 12.0 (or higher).</p><p>5. Adobe Reader to print certificate.</p>Alejandro Pascual-Valdunciel, PhD1.000/Courses/Journal-CME-39.10-Frequency-Selective-Suppression-of-Essential-Tremor-via-Transcutaneous-Spinal-Cord-Stimulation.htm2024-11-08T15:00:52.29000Experienced / IntermediateOnline

Journal CME 39.09: An online mindfulness-based group intervention for tics: A pilot randomized controlled trial

Aug 21, 2024 - Aug 21, 2025

Experienced / Intermediate

CME Credits:1.00

878Journal CME 39.09: An online mindfulness-based group intervention for tics: A pilot randomized controlled trialJournal CME 39.09<p>The Journal CME 39.09 article provides a study comparing a novel, video conference delivered group mindfulness-based intervention for tics (MBIT) to videoconference-delivered group psychoeducation, relaxation, and supportive therapy (PRST) for adults with TS or PTD.</p>602024-08-21https://education.movementdisorders.org/Detail/878/Journal-CME-39-09:-An-online-mindfulness-based-group-intervention-for-tics:-A-pilot-randomized-controlled-trialhttps://education.movementdisorders.org/Upload/ActivityImages/Journal-CME562837664663.jpg2024-08-21T00:00:002025-08-21T00:00:00<p><strong>ACCREDITATION STATEMENT</strong></p><p>This activity has been planned and implemented in accordance with the accreditation requirements and policies of the Accreditation Council for Continuing Medical Education (ACCME). The International Parkinson and Movement Disorder Society is accredited by the ACCME to provide continuing medical education for physicians.</p><p><br></p><p><strong>CREDIT DESIGNATION STATEMENT</strong></p><p>The International Parkinson and Movement Disorder Society designates this activity for a maximum of 1 <em>AMA PRA Category 1 Credits&trade;</em>. Physicians should only claim credit commensurate with the extent of their participation.</p><p><br></p><p><strong>FACULTY DISCLOSURE</strong></p><p>All individuals in control of content for this activity are required to disclose all financial relationships with ineligible companies (as defined by the ACCME) over the last 24 months. Disclosure information is available <a class="fr-file" href="https://s3-us-east-2.amazonaws.com/mds-lms/FroalaFiles/Journal%20CME%2039.09%20%E2%80%93%20Disclosures_20082024033339.pdf" rel="noopener noreferrer" target="_blank">HERE</a>. All relevant financial relationships have been mitigated in advance of this program.</p><p><br></p><p><strong>METHOD OF PARTICIPATION</strong></p><p>Each module will take approximately one (1) hour to complete. Upon reading the article, participants will take a post-test and must receive a grade of 75% or higher to pass. Participants are allowed multiple attempts to complete the post-test. Once the post-test is passed, participants are required to complete the module evaluation.</p><p><br></p><p><strong>SATISFACTORY COMPLETION</strong></p><p>Participants must complete an evaluation for each session they attend to receive continuing medical education credit. Your chosen session(s) must be attended in their entirety. Partial credit for individual sessions is not available.</p><p><br></p><p><strong>CONTENT VALIDITY STATEMENT</strong></p><p>All recommendations involving clinical medicine in MDS activities are based on evidence that is accepted within the profession of medicine as adequate justification for their indications and contraindications in the case of patients. All scientific research referred to, reported or used in CME in support or justification of a patient care recommendations conforms to the generally accepted standards of experimental design, data collection and analysis. Activities that promote recommendations, treatment or manners of practicing medicine not within the definition of CME or are knowing to have risks or dangers that outweigh the benefits or are knowing to be ineffective in the treatment of patients do not constitute valid CME.</p>MDS Education<p><strong>COURSE PURPOSE</strong></p><p>Journal CME highlights various articles covering relevant issues, developments and research topics in the area of movement disorders. Articles are selected from Movement Disorders, the official Journal of the International Parkinson and Movement Disorder Society.</p><p><br></p><p><strong>LEARNING OBJECTIVES</strong></p><p>Upon completion of this activity, learners will be able to:&nbsp;</p><p>1. Understand the importance of developing and testing effective, accessible, and safe treatment options for individuals with tics.</p><p>2. Assess how mindfulness-based interventions can be beneficial for a wide range of clinical concerns.</p><p>3. Evaluate the limitations of this study and how the results may be affected.</p><p><br></p><p><strong>INTENDED AUDIENCE</strong></p><p>This activity is intended for clinicians, other health professionals, researchers, policy makers from throughout the world, both MDS members and non-members, who interact with patients living with Movement Disorders.</p><p><br></p><p><strong>HARDWARE AND SOFTWARE REQUIREMENTS</strong></p><p>1. Active Internet connection (DSL or Cable). Dial-up connection will have constant buffering problem.</p><p>2. Compatible with Windows PC and MAC (256 MB of RAM or higher).</p><p>3. Activity is best viewed on Internet Explorer 9.0 or higher, Safari 5.0 or higher and Firefox 29.0 or higher.</p><p>4. Adobe Flash Player 12.0 (or higher).</p><p>5. Adobe Reader to print certificate.</p>Hannah E. Reese, PhD1.000/Courses/Journal-CME-39.09-An-online-mindfulness-based-group-intervention-for-tics-A-pilot-randomized-controlled-trial.htm2024-08-21T12:00:45.33000Experienced / IntermediateOnline

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Clinical Assessment Trainings

The International Parkinson and Movement Disorder Society has established traning materials for select rating scales. Learn about the use of each scale, see examples of a rater administering the test to patients, and to view examples of the rating items.

Certificate Programs

The Training & Certificate Programs for MDS scales include an examination, which will grant you a Certificate of Completion once you earn a passing score. Case exercises are also included to test your ability to administer the scales.

View programs »

Non-Certificate Video Trainings

These on-demand video modules are available for personal educational purposes. Special reduced rates are available to MDS members.

View video trainings »

Research Resources