PD Avengers: A Global Patient-Led Movement
Inspired by the book Ending Parkinson’s Disease, PD Avengers is an international movement advocating for real change in the fight against Parkinson’s disease. With over 7,000 members in 80 countries, this initiative unites patients, caregivers, medical professionals, and researchers to push for awareness, equitable treatments, and policy changes.
Cure Parkinson’s Trust: Accelerating Research
Based in the UK, The Cure Parkinson’s Trust is a patient-led organization dedicated to funding research aimed at finding a cure. Their innovative approach has led to the development of clinical trials exploring potential disease-modifying therapies that could slow the progression of Parkinson’s disease.
Shake It Up Australia: Non-Profit Research Initiative
In Australia, the Shake It Up Australia Foundation partners with the Michael J. Fox Foundation to fund non-profit research. This patient-led initiative accelerates the discovery of new treatments and improves the quality of life for people with Parkinson’s disease.
Davis Phinney Foundation
Established by former professional cyclist and Olympic medalist Davis Phinney, who was diagnosed with Parkinson's disease at age 40, the Davis Phinney Foundation focuses on “helping people living with Parkinson’s to live well today.” It provides educational resources, exercise programs, and funds related to improving the quality of life of those living with Parkinson’s.
stoPD: Supporting Patients Through Exercise and Therapy
stoPD is a nonprofit organization committed to helping people with Parkinson’s disease through innovative exercise-based programs. Founded in 2014 by neuroscientist Dr. Roberta Marongiu and actor Alex Montaldo, stoPD provides physical training, therapy, and creative activities to enhance mobility, confidence, and overall well-being for individuals living with Parkinson’s disease.
Parkinson-GFAS: Education and Support for the Latin American Community
Parkinson-GFAS is a nonprofit organization focused on improving the lives of individuals affected by Parkinson’s disease in the Latin American community. Through educational programs, online support groups, and advocacy efforts, Parkinson-GFAS aims to empower patients, caregivers, and healthcare professionals with valuable resources. Their initiatives include the “A present for you” program, which provides virtual sessions with experts in neurology, nutrition, psychology, and rehabilitation, as well as leadership training for Parkinson’s disease ambassadors to spread awareness and support within their communities.
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